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Empowering People, Launching lives

Participate in research

Organisations and individuals seeking your help in progressing their research.

We receive regular requests to be a part of research, or to share new research studies with our stakeholders. This includes organisations such as leading universities in the fields of psychology and ABA, as well as individuals seeking to improve the understanding of autism, and the work we can do to support people with autism. We are keen to support any requests that help this, once reviewed by our Ethics Committee to ensure they meet the moral standards and values of our organisation. We will not consider any research proposals without prior ethics approval from the institute of study.

To take a look at some of the projects we have recently shared including results, where available, visit our archive page.

An analysis of quality of life for 18 to 22 year olds with intellectual disabilities living in London: How do students with intellectual disabilities rate their quality of life and what factors impact their views?

This study is designed to examine the factors that might affect quality of life for 18-22 year olds with intellectual disabilities and what they view as either barriers to success or positive supports. The interviews will take place over Zoom and will last between 45 minutes and one hour. The goal of the research is to contribute qualitative data on quality of life from the perspective of the individuals being supported.

Researcher: Ceneca Jackson, jacksonc1@roehampton.ac.uk
Supervisor: Dr Wolfgang Mann, wolfgang.mann@roehampton.ac.uk

Deadline: 1st March 2022

Parents’ views of care accessibility for their children with autism or additional needs; a qualitative study

The purpose of this study is to identify the views parents of children/young people with additional needs hold about the accessibility of childcare. The intention is to identify the key themes that come up when discussing how these parents have managed their childcare needs and what things may be able to be put in place to support them.

Participation will consist of a one-to-one interview lasting around an hour. If you would like to contribute please contact the researcher below.

Researcher: Shanaz Bhola-Tyndale, Shanaz.Bhola-Tyndale@city.ac.uk
Supervisor: Professor Dermot Bowler, d.m.bowler@city.ac.uk

Deadline: 1st March 2022

An exploration of cosplay in autistic children and young people

This research is seeking to raise awareness of the play – life experiences of autistic individuals to hopefully lead to better understanding, higher inclusivity, and focused support. In order to achieve this, it is imperative to gain the direct perspectives of autistic individuals and champion their authentic voice and opinions.

Participation in the research will require you and your child to share your thoughts about your child’s cosplay practice and experience by attending an interview, either face to face or online. The researcher will ask you some questions about their experiences, such as which characters they like, who they choose to cosplay and why.

If you would like to participate, please contact the researcher using the details below.

Researcher: Alice Leyman, alice.leyman@port.ac.uk
Supervisors: Anita Franklin, anita.franklin@port.ac.uk and Tara Woodyer, tara.woodyer@port.ac.uk

Deadline: 31st January 2022

Social and romantic relationships of adolescents and young adults with neurodevelopmental disorders

The project explores sexuality knowledge and experiences of romantic relationships in young people. The study is interested in different groups of young people, neurotypicals, autistic young people and young people with ADHD and ASD co-occurring with ADHD.

In this study, researchers will be conducting short interviews with young people, caregivers and educators to find out about their experiences with sexuality education and what improvements could be made. To take part in this study, contact the researcher below.

Researcher: Magdalena Smusz, M.P.Smusz@edu.salford.ac.uk
Supervisors: Clare Allely, c.s.allely@salford.ac.uk, Amy Bidgood, a.bidgood@salford.ac.uk, Mariyana Schoultz,M.Schoultz@salford.ac.uk

Deadline: 28th February 2022

Safer online lives: use of the internet & social media by people with Intellectual Disabilities

This research is looking for individuals with intellectual disabilities (and autism) as well as professionals, family and carers to take part in a short 20 minute survey. The research is looking at the risks, barriers, benefits and opportunities of internet usage for adults with intellectual disabilities. If you wish to participate, click the link to complete the survey.

Research assistant: Jessie Newsome, J.Newsome@kent.ac.uk
Researcher: Dr Paraskevi Triantafyllopoulou, P.Triantafyllopoulou@kent.ac.uk

Deadline: 31st January 2022

Sensory reactivity in genetic syndromes and autism

The study is looking for autistic children 5 years and above and their parent/carers to take part in some fun social and non-social games, with and without background noise, whilst their child wears a sensor watch. The study will take place online, using video teleconferencing from the comfort of their home and should take about two hours for the parent (less than 1 hour for the child).

The research, funded by University College London, focuses on sensory processing and physiological responsivity in autistic children, how this differs from typical development, and whether this is similar in other developmental disorders and related conditions.

If you’d like to participate in this research, please contact Breanne Kearney, breanne.kearney.20@ucl.ac.uk. More information can about the research can be found here.

The experiences and mental health of students with autism attending UK secondary schools with a specialist provision, and their parents during the time of the COVID-19 pandemic

The purpose of this study is to gain an understand of how children with autism and their parents experienced the effects of the COVID-19 pandemic and lockdowns. The research will be conducted via a video interview lasting around 20 minutes.

If you would like to take part, or find out more information, please get in touch with one of the researchers using the information below.

Researchers: Elif Acar ea975@live.mdx.ac.uk, Marjana Aktar ma2831@live.mdx.ac.uk and Mohammed Ahmed ia492@live.mdx.ac.uk
Supervisor: Frauke Elichaoff, F.Elichaoff@mdx.ac.uk

The effects of COVID 19 on the cardiovascular health (Heart health) of children with autism

The Institute of Technology Carlow, Ireland is conducting a survey to find out about the cardiovascular health (heart health) of school going children with autism and the effect that COVID-19 related restrictions has had on this aspect of their health.

By taking part you will be helping the research team understand some of the risk factors for cardiovascular health in this community and how COVID-19 related restrictions have impacted them. Take the survey here.

Researcher: Katie White, katie.white@itcarlow.ie
Supervisor: Sharon Kinsella, sharon.kinsella@itcarlow.ie

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