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Empowering People, Launching lives

Participate in research

Organisations and individuals seeking your help in progressing their research.

We receive regular requests to be a part of research, or to share new research studies with our stakeholders. This includes organisations such as leading universities in the fields of psychology and ABA, as well as individuals seeking to improve the understanding of autism, and the work we can do to support people with autism. We are keen to support any requests that help this, once reviewed by our Ethics Committee to ensure they meet the moral standards and values of our organisation. We will not consider any research proposals without prior ethics approval from the institute of study.

To take a look at some of the projects we have recently shared including results, where available, visit our archive page.

Safer online lives: use of the internet & social media by people with Intellectual Disabilities

This research is looking for individuals with intellectual disabilities (and autism) as well as professionals, family and carers to take part in a short 20 minute survey. The research is looking at the risks, barriers, benefits and opportunities of internet usage for adults with intellectual disabilities. If you wish to participate, click the link to complete the survey.

Research assistant: Jessie Newsome, J.Newsome@kent.ac.uk
Researcher: Dr Paraskevi Triantafyllopoulou, P.Triantafyllopoulou@kent.ac.uk

Deadline: 31st January 2022

Sensory reactivity in genetic syndromes and autism

The study is looking for autistic children 5 years and above and their parent/carers to take part in some fun social and non-social games, with and without background noise, whilst their child wears a sensor watch. The study will take place online, using video teleconferencing from the comfort of their home and should take about two hours for the parent (less than 1 hour for the child).

The research, funded by University College London, focuses on sensory processing and physiological responsivity in autistic children, how this differs from typical development, and whether this is similar in other developmental disorders and related conditions.

If you’d like to participate in this research, please contact Breanne Kearney, breanne.kearney.20@ucl.ac.uk. More information can about the research can be found here.

Wellbeing in Autistic Young People and their Families

Adolescence and young adulthood are a time of huge physical, social and emotional change for young people. Young people with autism likely have a very different experience of this age compared to their neurotypical peers, however very little is known about their well-being and mental health through these years. Therefore, this study aims to learn more about the wellbeing of young people with autism, in order to develop understanding of autism across this age period.

The study is looking for young people aged 14-25 as well as parent/carers to participate. Follow the links for the young person’s survey or the caregiver’s survey.

Researchers: Elizabeth Hawkins, EMH830@student.bham.ac.uk & Lucy Licence, LAL277@student.bham.ac.uk
Supervisor: Dr Caroline Richards, c.r.richards@bham.ac.uk

Deadline: 31st October 2021

The experiences and mental health of students with autism attending UK secondary schools with a specialist provision, and their parents during the time of the COVID-19 pandemic

The purpose of this study is to gain an understand of how children with autism and their parents experienced the effects of the COVID-19 pandemic and lockdowns. The research will be conducted via a video interview lasting around 20 minutes.

If you would like to take part, or find out more information, please get in touch with one of the researchers using the information below.

Researchers: Elif Acar ea975@live.mdx.ac.uk, Marjana Aktar ma2831@live.mdx.ac.uk and Mohammed Ahmed ia492@live.mdx.ac.uk
Supervisor: Frauke Elichaoff, F.Elichaoff@mdx.ac.uk

The effects of COVID 19 on the cardiovascular health (Heart health) of children with autism

The Institute of Technology Carlow, Ireland is conducting a survey to find out about the cardiovascular health (heart health) of school going children with autism and the effect that COVID-19 related restrictions has had on this aspect of their health.

By taking part you will be helping the research team understand some of the risk factors for cardiovascular health in this community and how COVID-19 related restrictions have impacted them. Take the survey here.

Researcher: Katie White, katie.white@itcarlow.ie
Supervisor: Sharon Kinsella, sharon.kinsella@itcarlow.ie

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