Building your support village
Having a child who is nonverbal or has different needs, it’s so important to spend time learning and educating yourself because as their parents/carers you are their voice. You are the people that must fight to get the right help and support in place. You are also the people who know your child the best and will learn how best to help them and to make the world the best place for them. Tell your family, tell your friends, build your support village. Make your child realise they’re accepted.
I know you might feel it’s scary and daunting but talking about their needs, wants and diagnosis is a good thing. If you didn’t like the light on constantly you would ask for it to be off just like if they don’t like something, they will ask in their own way for it to turned off. The minute you make it an issue it becomes an issue.
I want to end this blog on something I’d like you to remember. There are going to be a lot of tough times, but you will get through it because you are everything to that person and they are everything to you. You will feel like you’re fighting the world, because you are. But lastly what I will say is amongst the heartache and tough times enjoy your child. Don’t compare, don’t apologise, don’t make excuses, just love.
Use social media, use chat groups, use whatever you can to help support you and your family’s journey.
We are in it together and here to support each other.
We recently launched a brand-new resource hub with loads of factsheets and information for families going through the diagnostic process. Check out the new resource here. Or if you’re interested in more in-depth information, take a look at our online training.